Patient and public involvement programme
From the 1 January 2013, NICE's Patient and Public Involvement Programme (PPIP) will be changing its name to the Public Involvement Programme.
The Patient and Public Involvement Programme (PPIP) is a team at NICE that develops and supports patient, carer and public involvement. The PPIP:
- develops, implements and reviews methodologies to identify opportunities for lay involvement in NICE's work
- provides guidance and support on approaches to lay involvement for NICE's Board, its internal teams, and the external groups NICE commissions to develop its guidance
- works with organisations that represent lay people's interests to support their involvement in developing and implementing specific guidance or quality standard topics
- provides information, training and support to individual lay people who are interested in or contribute directly to NICE's work
- contributes to the development of the lay versions of NICE guidance
- offers advice to guidance developers on patient and public issues relevant to the scoping and development of NICE guidance
- evaluates patient, carer and public involvement in NICE activities.
1. Why are we changing our name?
From April 2013, as part of the Health and Social Care Act 2012, NICE will broaden its scope to include social care with the development of social care guidance and quality standards. We want to ensure that the work of the PPIP is relevant to social care service users, and to other service user groups who may not feel that the term ‘patient' is relevant to them. It has always been our aim to involve the people most relevant to a particular topic we are looking into, whether they be patients, carers, service users, advocates, members of particular communities, parents or guardians, or other audiences. By changing our name to the Public Involvement Programme we hope to show that our activities are inclusive and encompass all users of health and social care services, and demonstrate that our scope reaches beyond clinical and health related audiences.
2. What will this change mean for patients and patient organisations?
We will continue to work with, and build relationships with, patients and patient organisations as we have always done. Although we are changing our name, we will not be reducing the work we do with patients but enhancing and expanding the programme to include our new audiences. Patients and patient organisations will continue to be a major part of our work.
3. What happens next?
We will formally change the name of our team from Patient and Public Involvement Programme (PPIP) to Public Involvement Programme (PIP) from 1 January 2013. This means we will change all references on the NICE website, and use Public Involvement Programme in all our future written work and when we talk about our work at internal and external meetings. The individual email addresses and contacts you may already have with the team will remain the same, but, if you would like to contact the Public Involvement Programme, there is a team email address: email@example.com.
Involving patients and the public
The PIP has produced a leaflet summarising how it involves patients, service users, carers and the public in NICE's work.
Hard copies of this leaflet can also be ordered by contacting PIP@nice.org.uk.
The PIP evaluates what works well, for NICE, its Collaborating Centres, and for the lay people involved in its work programmes.
The PIP's first project to evaluate the experiences of patient and carer members involved in Guideline Development Groups was completed in 2004. Read the evaluation report.
The evaluation project was repeated during 2008. Please see the summary of this update.
In 2009 we evaluated the experience of community members involved in public health Programme Development Groups. Read the 2010 evaluation report.
If you have a general enquiry please contact our team PIP@nice.org.uk
This page was last updated: 31 March 2014