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NICE launches new quality standard on chronic kidney disease on World Kidney Day

NICE has today (10 March) launched its new quality standard for chronic kidney disease (CKD) in adults. The launch coincides with World Kidney Day[1].

CKD is a common condition encompassing problems such as abnormal kidney function or structure, with around 1 in 10 adults in the UK having mild to severe CKD[2]. Although less common in younger adults under 45 years (affecting around 1 in 50 people), kidney problems increase with age, affecting half of people aged over 75 years[3],[4]. If CKD remains undetected, it can progress to established kidney failure requiring dialysis or transplantation, very poor health and in some cases early death.

Aimed at patients and the public, health and social care professionals, commissioners and service providers, NICE quality standards are markers of excellence in patient care. They are developed in collaboration with the NHS and social care professionals, along with their partners and service users and are the only health and social care standards that apply nationally in England.

Based on the best available evidence, usually NICE guidance or other sources that have been accredited by NHS Evidence, NICE quality standards will form a cornerstone of the new NHS Outcomes Framework[5], which sets out the aims and objectives towards improving outcomes in the NHS, and what this means for patients and healthcare professionals.

The quality standard on CKD defines high quality patient care, and includes such statements as: people with CKD are assessed for disease progression; people with CKD are assessed for cardiovascular risk; people with established renal failure have access to psychosocial support (which may include support with personal, family, financial, employment and/or social needs) appropriate to their circumstances; and, people with CKD are supported to receive a pre-emptive kidney transplant before they need dialysis, if they are medically suitable.

Dr Fergus Macbeth, Director of the Centre for Clinical Practiceat NICE said: “CKD is a potentially serious condition affecting a significant proportion of the population. If it is not managed properly, people with the condition may have up to 35 times higher risk of premature death[6]. These standards will act as a tool for local healthcare professionals to help deliver the best available care for their patients. The NICE quality standard on CKD has been developed from a range of evidence sources such as published NICE guidance, and the UK Renal Association Clinical Practice Guidelines.”

Dr Paul Stevens, Consultant Nephrologist and Associate Medical Director from Kent and Canterbury Hospital, and Topic Expert Group Chair said: “I was very pleased to be involved in the development of these standards, which show the best care pathways for those with this condition. Robust, clear and evidence-based, I have every expectation they will be welcomed by both patients and healthcare professionals alike.”

Fiona Loud, Chair of the Kidney Alliance said: “Kidney disease is more common than people might think, and as someone who has personally experienced the devastating effects of kidney failure, I am delighted that the Kidney Alliance was involved with NICE in the development of this new quality standard. I am confident it will improve outcomes for patients with CKD, and aid healthcare professionals involved in care and treatment.”

Kate Shipton, chronic kidney disease patient said: “After two years on dialysis, my wonderful son gave me one of his kidneys last year, and so far things are going well. My experience of having chronic kidney disease has made me acutely aware of how important it is to have clear standards in place that will help people like me. I am very pleased that NICE has produced these, and I am sure they will make a significant contribution in the battle against this disease.”

The quality standard on CKD is available on the NICE website from Thursday 10 March.

Ends

Notes to Editors

1. The quality standard on CKD in adults has been developed from the following evidence sources:

2. Related policy documents:

  • Department of Health (2009) Achieving excellence in kidney care: Delivering the National Service Framework for Renal Services. Available from www.dh.gov.uk
  • Department of Health (2007) Second Progress Report on the Renal NSF. Available from www.dh.gov.uk
  • Department of Health (2004) National Service Framework for Renal Services: Part One - Dialysis and transplantation. Available from www.dh.gov.uk
  • Department of Health (2005) National Service Framework for Renal Services - Part Two: Chronic kidney disease, acute renal failure and end of life care. Available from www.dh.gov.uk

3. The NHS Outcomes Framework can be found at: http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH122944

4. Quality standard topics are referred to NICE by ministers on the advice of the National Quality Board, a group of representatives from health and social care, committed to improving quality in the NHS and overseeing the reforms aimed at improving care. Further information on the National Quality Board can be found at: http://www.dh.gov.uk/en/Healthcare/NationalQualityBoard/index.htm

About NICE

1. The National Institute for Health and Care Excellence (NICE) is the independent organisation responsible for providing national guidance and standards on the promotion of good health and the prevention and treatment of ill health.

2. NICE produces guidance in three areas of health:

  • public health - guidance on the promotion of good health and the prevention of ill health for those working in the NHS, local authorities and the wider public and voluntary sector
  • health technologies - guidance on the use of new and existing medicines, treatments, medical technologies (including devices and diagnostics) and procedures within the NHS
  • clinical practice - guidance on the appropriate treatment and care of people with specific diseases and conditions within the NHS.

3. NICE produces standards for patient care:

  • quality standards - these reflect the very best in high quality patient care, to help healthcare practitioners and commissioners of care deliver excellent services
  • Quality and Outcomes Framework - NICE develops the clinical and health improvement indicators in the QOF, the Department of Health scheme which rewards GPs for how well they care for patients.

4. NICE provides advice and support on putting NICE guidance and standards into practice throughits implementation programme, and it collates and accredits high quality health guidance, research and information to help health professionals deliver the best patient care through NHS Evidence.

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[1] World Kidney day is a joint initiative of the International Society of Nephrology (ISN) and the International Federation of Kidney Foundations (IFKF). The UK Celebration of World Kidney Day is led by the Kidney Alliance.

[2] UK National Kidney Federation

[3] Many elderly people with CKD may not have ‘diseased' kidneys, but have normal ageing of their kidneys. Although severe kidney failure will not occur with normal ageing of the kidneys, there is an increased chance of high blood pressure and heart disease or stroke.

[4] UK National Kidney Federation

[5] The recently announced Transparency in Outcomes framework for the NHS proposes using quality standards to produce more detailed commissioning guidance to meet the suggested outcome goals.

[6] NHS Kidney Care

This page was last updated: 12 March 2011

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Selected, reliable information for health and social care in one place

Accessibility | Cymraeg | Freedom of information | Vision Impaired | Contact Us | Glossary | Data protection | Copyright | Disclaimer | Terms and conditions

Copyright 2014 National Institute for Health and Care Excellence. All rights reserved.

Accessibility | Cymraeg | Freedom of information | Vision Impaired | Contact Us | Glossary | Data protection | Copyright | Disclaimer | Terms and conditions

Copyright 2014 National Institute for Health and Care Excellence. All rights reserved.