Information for those involved in guidance development.

Contributing to NICE guidelines

This guide explains how individuals and organisations can get involved in developing NICE guidelines.

Developing NICE guidelines: how to get involved


Contributing to a technology appraisal: help for patients and carers

We've developed the following guides to support national patient and carer organisations and patient experts involved in NICE technology appraisals.

Information for national patient and carer organisations

 An overview of NICE technology appraisals for patient and carer groups PDF 330 kB

 Scoping technology appraisals: a factsheet for patient and carer organisations PDF 370 kB

 Developing technology appraisal guidance: a factsheet for patient and carer organisations PDF 200 kB

 Frequently asked questions on the cancer drugs fund: for patient and carer organisations  PDF 152 kB

 Hints and tips on nominating patient experts PDF 150 kB

Submitting evidence to a NICE technology appraisal

You can provide evidence on behalf of your organisation using the submission template. In the guide below we have pulled together advice on gathering and presenting the information, as well as what to avoid.

 Patient organisation submission guide PDF 648 kB

 Patient organisation submission template Microsoft Word 40 kB

Information for patient experts

This document contains information for patient experts on how to prepare for the meeting and what to expect.

 Hints and tips for patient experts PDF 403 kB 

If you are a patient expert at a committee meeting, you have the opportunity to submit a personal statement before the meeting. This is so that you can tell the committee about your experience of the condition and treatments using our template for patient experts.

 Patient expert statement template Microsoft Word 40 kB

If you have any questions or would like further information about participating in technology appraisals, please contact the Public Involvement Advisers for technology appraisals, Heidi Livingstone on 0207 045 2183 or Chloe Kastoryano on 0207 045 2188.

NICE diagnostics guidance: patient and carer organisations submissions

We welcome patient and carer organisation submissions to NICE’s diagnostics assessment programme. The following information document, submission guide and submission template were developed by an international working group, which included NICE staff. We have adapted the documents to make them suitable for our purposes.

The information for patient and carer organisations document gives an overview of patient and carer organisation submissions for the diagnostics assessment programme.

 Information for patient and carer organisations PDF 152 kB 

Submitting evidence to the NICE diagnostics assessment programme

Use the template to provide evidence on behalf of your organisation. The guide gives you information about how to complete your submission, including how to gather and present your evidence.

 Submission template for patient and carer organisations Microsoft Word 29 kB 

 Submission guide for patient and carer organisations PDF 446 kB 

If you have any questions about participating in diagnostics guidance development, please contact the Public Involvement Adviser for diagnostics, Lydia Shears on 0161 870 3213.