Information for those involved in guidance development.
Contributing to a medicines evaluation: help for patients and carers
To help you participate in our medicines evaluations we have:
- A named public involvement adviser to support you throughout each evaluation.
- Monthly Zoom inductions for patient and carer organisations. Whether you already work with us, are new to working with us, or think you may have a medicine coming to NICE in future, you're welcome to join one of these sessions. We call them inductions, but they work equally well as ‘kick off’ meetings or refreshers. We’ll take you through the process, our support, and options to get involved and answer your questions. We can top up with further training and support. To find out more or to book a place contact us on 0161 870 3020 or email pip@nice.org.uk.
- A set of guides.
Information for national patient and carer organisations
An overview of NICE technology appraisals for patient and carer groups (Word)
Scoping technology appraisals: a factsheet for patient and carer organisations (Word)
Developing technology evaluation guidance: a factsheet for patient and carer groups (Word)
Nominating patient experts: a factsheet for patient and carer organisations (Word)
FAQs for patient and carer organisations on declarations of interest (Word)
Submitting evidence to a NICE medicines evaluation
You can provide evidence on behalf of your organisation using the submission template. In the guide below we have pulled together advice on gathering and presenting the information, as well as what to avoid. If you would like advice on preparing for a submission, or for us to read a draft of your submission, contact us on 0161 870 3020 or email pip@nice.org.uk.
Patient organisation submission guide (Word)
Patient organisation submission template (Word)
Please use the guide and template below if you are writing a submission following a period of managed access. If you are not sure whether to use this, please contact your public involvement adviser.
Patient organisation submission guide: after managed access (Word)
Patient organisation submission template: after managed access. (Word)
Information for patient experts
This document contains information for patient experts on how to prepare for the meeting and what to expect.
A guide for preparing to be a patient expert (Word)
If you are a patient expert at a committee meeting, you have the opportunity to submit a personal statement before the meeting. This is so that you can tell the committee about your experience of the condition and treatments using our template for patient experts.
Patient expert statement template (Word)
This guide explains how to use the Summary of Information for Patients (SIP) which is a written by the company in who are bringing the medicine to NICE for evaluation for use in the NHS. The SIP is a plain English version of their submission to NICE written specifically for patients participating in the NICE evaluation.
How to use the company Summary of Information for Patients (Word)
If you have any questions or would like further information about participating in technology appraisals, please contact the public involvement advisers for technology appraisals, on 0161 870 3020 or email pip@nice.org.uk.
Contributing to NICE guidelines
This guide explains how individuals and organisations can get involved in developing NICE guidelines.