Putting you at the heart of our work 

Your experiences are vital to the development of our guidance, standards and advice. 

We are committed to involving people who use services, carers and the public in the development of our guidance and other products.

Your involvement means our products are focused around the people most directly affected by our recommendations.

Find out more below 

woman smiling holding baby

Working with you

We need you! People with lived experience: Real people, real lives. Whether you use services or represent those who do, find out how you can get involved.

Voluntary and community sector organisations

  • Get help to develop our guidance and standards
  • attend inductions or masterclasses to understand how we work
  • find out ways to put our guidance into practice.

 Get involved 

People who use services, carers or members of the public

  • Join a committee to help develop our guidance and standards
  • comment on guidance that's being developed
  • get support from our public involvement team.

 Get involved 

Making an impact on our guidance

Celebrating the success of people who have made a difference to our guidance and advice. Their invaluable input has led to an improvement in NHS and care services for those who need it.

How people with lived experience have made a difference to our guidance

National Ankylosing Spondylitis Society logo

Getting the patient’s voice heard is crucial to developing guidance that works in the real world’

Sally Dickinson, Information and Communications Manager - National Ankylosing Spondylitis Society (NASS)

About our public involvement work

Public involvement is a vital part of the way we work. Our Public Involvement Programme develops and supports the involvement of people who use services, carers and members of the public, along with the organisations that represent their interests.

Find out more about:

  • our principles
  • how we work
  • improving the way we work with you.

About public involvement at NICE

Our podcast, NICE Talks, includes an episode about the role of patient representatives and organisations in our work. You can download or stream it from wherever you get your podcasts.

Victoria Thomas
We involve people in our work - service users, carers, charity workers and more - to challenge accepted wisdom.

They allow us to look at evidence through a fresh lens - that of the person directly affected by the recommendations we're making.

Victoria Thomas, Head of Public Involvement

Get in touch: pip@nice.org.uk    Tel: 0161 870 3020