You can now review and comment on this draft guideline.

The consultation closes on 12 August 2016 at 5pm

How to comment

1. Register your organisation

Your organisation needs to be registered as a stakeholder before we can accept comments.

Not eligible? Contact the stakeholder organisation that most closely represents your interests and pass your comments to them.

2. Read the consultation documents

Documents to comment on:

If you want to review the economic model, please see 5. Economic model below and fill in the confidentiality form.

Other information about the consultation

3. Add your comments

  • You must use this comments form.
  • You must declare any links with, or funding from, the tobacco industry

If you share similar views with another organisation, send a joint response.

Make sure you consider:

  • The areas that will have the biggest impact on practice and be challenging to implement
  • How to help users overcome challenges

Developing NICE guidelines: how to get involved suggests some other areas to comment on.

4. Email the form to us

Email: EndOfLifeCareChildren@nice.org.uk 

Deadline: 12 August 2016, 5pm

5. Economic model

The Developer has produced economic models to support the guideline on end of life care for infants, children and young people. The economic plan provides details of the models. To receive an executable version of a model, please submit a request to EndOfLifeCareChildren@nice.org.uk, with a signed copy of the confidentiality acknowledgement and undertaking form.

We will then send you a link to an executable version of the economic models by email. The deadline for returning your comments is the same as for the guideline consultation: 5pm, 12/08/16.

Please note: 

  • Economic models and their contents are confidential and are protected by intellectual property rights, which are owned by the Developer. They can only be used to inform your understanding of the guideline. They should not be used to inform the development of other economic models, and should not be re-run except to test reliability.

 

As set out on the confidentiality form:

  • Models and their contents should only be shown to people in your organisation who need to see them to help you respond to the guideline consultation.
  • You must ensure that anyone you show the files to understands that they are bound by the terms of the confidentiality acknowledgment and undertaking form.
  • You must not copy the files, and must delete them from your records on publication of the guideline.
  • You should not publish the models in whole or in part, or use them for any purpose other than participating in the consultation process.

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